See HERE for a complete list of myopathies.
Our Privacy Policy:
The LGMD-1D DNAJB6 Foundation does not share personal information. We do not track or profile you. The Foundation is strongly committed to protecting the privacy of its user community and is dedicated to ensure that your information cannot be be linked back to you. Your participation in this registry will be kept confidential and your contact with outside researchers and orginizations interested in your personal data will only be initiated by you and only you personally contacting the interested person or agency. We follow the US HIPAA and European GDPR guidelines for registrants' data protection. As a voluntary registry this is a non binding agreement and registrants can opt out at any time by contacting our email: wslowery.57@lgmd1d.org
William S Lowery MD